Claudette Dion said singer’s future career was uncertain due to symptoms of stiff person syndrome, though ‘the idea is to return to the stage’
Celine Dion's sister says the Grammy Award-winning singer doesn't have control of her muscles as she continues to live with a rare neurological disorder.
Claudette Dion said in a new French-language interview that her sister is working hard to overcome her illness, called "stiff person syndrome."
She tells "7 Jours" that the illness, affecting an estimated one in a million people, is not yet well understood by current medical science, noting that vocal cords are muscles too.
The 75-year-old says the Fondation Maman Dion, where she is CEO and spokesperson, receives numerous messages asking about Celine Dion's health and well-being.
Claudette Dion says she hopes her sister can return to the stage one day but isn't certain when that could happen.
The Quebec-born songstress announced her diagnosis in December 2022 after experiencing sudden severe muscle spasms.
Earlier this year, she cancelled all her scheduled tour dates through April 2024 and apologized to her fans in a social media post.
"Unfortunately, the spasms affect every aspect of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal cords to sing the way I'm used to,'' Celine Dion wrote at the time.
Stiff person syndrome causes rigid muscles and painful muscle spasms, which can be triggered by loud noises or light touch.
The cause isn't known, but it is thought to be an autoimmune disorder.
